Care after your fecal transplant
If you have recently undergone a fecal transplant for your C. difficile infection, your doctor may talk to you about possible temporary side-effects, such as nausea, bloating, and mild cramping. If you have any changes in your health or experience negative symptoms after your FMT, let your doctor know right away.
OpenBiome’s Post-FMT Patient Guide offers guidance on how to care for yourself after a fecal transplant. To minimize your risk of re-infection with C. difficile:
1. Disinfect your home with a tough cleaner, as C. difficile forms spores that are resistant to common household cleaners. We recommend you use an Environmental Protection Agency (EPA)-registered disinfectant with a C. difficile-sporicidal label claim, such as household bleach or a powerful chlorine agent. Make sure to scrub high-touch surfaces including toilets, faucets and showers, and scrub forcefully.
2. Protect yourself when cleaning. At a minimum wear disposable gloves, and wash your hands with soap and water immediately afterwards.
3. Communicate with your doctor. Make sure your PCP knows that you have undergone a fecal transplant to treat C. difficile so that he or she may factor this history into decisions about your care. Taking antibiotics after FMT increases the risk of C. difficile reinfection, but should you fall ill with an infection that requires antibiotics, talk to your doctor about options for lower-risk medicines.
Official Resources for Patients
- American Gastroenterological Association Fecal Microbiota Transplant Information Center: offers information for patients, clinicians, and the general public, including a guide about who might be a good candidate for the procedure
- Centers for Disease Control & Prevention: offers general information for patients and guidelines for clinicians, healthcare facilities, and public health departments
Community Support & Getting Involved
If you would like to become more involved in efforts to make safe access to fecal transplants more widespread, there are several ways for you to become involved. Below is a list of patient advocacy groups and support groups working to bring fecal transplants to patients who need it.
- The Fecal Transplant Foundation: a resource and advocacy site run by a team of physicians, healthcare professionals and patients to promote safe access to FMT
- The Power of Poop: a large information site for patients, by patients on FMT and microbiome health
- C Diff Foundation: an education and advocacy group that promotes the prevention and treatment of C. difficile
- C. Difficile Support Group: a forum for non-medical support and advice related to C. difficile
- Peggy Lillis Memorial Foundation: dedicated to preventing families from losing loved ones to C. difficile